Table
1. Patient
Demographic Data Items
Item |
Description |
[CANREG ID] |
CanReg ID is a unique nine-digit
number allocated automatically by the computer during data storage.
First four digits represent year. If a patient has more than one tumour, each tumour
is given the same CanReg ID by specifying
it at the multiple primary section of the program. These primary tumours can be distinguished by primary site,
morphology and incident date. |
[FIRST NAME] |
The
patient’s first name at the time of registration. Fifteen digits
maximum. |
[SURNAME] |
The
patient’s surname or family name at the time of registration.
Fifteen digits maximum. |
[OTHER NAME] |
Other
name or surname of a female at birth. Initials, abbreviations and
nicknames should only be used if the full name is not known. Fifteen
digits maximum |
[SEX] |
Sex
is the gender of the patient. If there is no clear evidence as to the
patient’s sex in the hospital notes, sex should be recorded as
unknown; (1) Male, (2) Female, (9) Unknown. |
[AGE] |
Age
is the age at incident of cancer. Age is not a function of time of
abstraction. Age is very vital in the analysis of incidence rates. |
[DATE OF BIRTH] |
The
patient’s date of birth. It is a key item in cancer data
analysis. It enables age at diagnosis to be established for
epidemiological and survival analyses. The date of birth is also used
to check the central database at the registry for duplications and for
cross-referencing purposes. The date field is in a format of DDMMYYYY. |
[ETHNICITY] |
The
ethnic category of the patient as specified by the patient. |
[PLACE OF RESIDENCE] |
The
aim here is to record the patient’s usual address at the time of
diagnosis with a registrable condition, not any subsequent condition.
It is normally a city, town or a village. This field assists
epidemiological studies by establishing linkages to an exposure, etc.
Address is the usual residence of the patient. Address is essential to
identifying residents and non-residents, thus defining an inclusion and
exclusion criteria of a case for the registry. |
[DISTRICT] |
District
is the administrative area of the registry population coverage where
the place of residence of the patient is located. Districts normally
have official census data which is very useful for distributions and
measurements of rates. |
[OCCUPATION] |
The
patient’s usual occupation. Details of a patient’s
occupation are recorded for use in epidemiological studies of the
influence of social and environmental factors on cancer incidence and
survival. The patient’s main lifetime occupation is
the one most likely to affect the probability of developing or
surviving cancer. Good reliable data on main lifetime occupation can be
very difficult to collect as patients may have retired or recently
changed occupation because of declining health, etc. |